Narcolepsy Connections
Narcolepsy Connections is an accurate, up-to-date, informative website providing support and information to narcolepsy sufferers and their friends and family, as well as people suspecting that they may be suffering from narcolepsy.
GP's may see only very few people living with narcolepsy in their whole career and therefore are not always familiar with the core symptoms of narcolepsy. This site will equip patients who have narcolepsy or who are seeking a diagnosis with the information and advice to ensure the best available management of their sleep disorder.
Narcolepsy Connections has been developed to help you learn more about the condition and offer long-term support and encouragement in overcoming obstacles to optimal treatment and daily living.
The onset of narcolepsy is common in teenagers, when education, passing exams, developing social circles and future employment choices are all important issues. Teenagers suffering from narcolepsy may be mistaken for having poor sleeping habits, a recreational drug problem or being just plain lazy. Later in life, narcolepsy can cause severe problems at work and difficulties socialising as well as financial hardship. If you are visiting this site you may be concerned about yourself or a loved one who is suffering or suspected to be suffering from disabling or excessive sleepiness, one of the major symptoms of narcolepsy. Well, be reassured you’ve come to the right place.
On this site you will find:
- A detailed overview of the condition – its possible causes, key symptoms, diagnosis and treatments available
- Advice about how to live with the condition and manage the symptoms in our well-being plan and access to our community zone to enable interaction with other sufferers to share experiences and information
- Guidance on what to do if you are declined funding for treatment and a link to find your nearest sleep centre or sleep clinic
This site has the full support of three leading sleep experts who are available to answer your questions and offer advice via our interactive community zone.
In the future we hope to look at extending the service, possibly by setting up local support groups that are linked to sleep centres, introducing a regular newsletter or featuring additional interactive sections in our community zone.
