Resources and links
Below is a link to guidelines, clinical papers and other useful links that will provide information on diagnosis, treatments and studies investigating the possible causes of narcolepsy.
Narcolepsy Association UK (UKAN)
UKAN is a Registered Charity that offers advice, support and information to members. UKAN is a member of the European Narcolepsy Network.
Website: http://www.narcolepsy.org.uk
The European Federation of Neurological Societies (EFNS)
The EFNS is an organisation that unites and supports neurologists from across Europe. They have produced guidelines on how to manage narcolepsy and the treatments available.
The guidelines can be viewed by clicking on the link below
http://www.blackwellpublishing.com/products/journals/ene/mcqs/oct06.pdf
International Classification of Sleep Disorders (ISCD)
The ISCD was published by the American Academy of Sleep Medicine and outlines the criteria used by doctors to diagnose patients with narcolepsy.
The ICSD can be viewed by clicking on the link below
http://www.aasmnet.org/Members/Resources/PDF/ICSDTOCIndex.pdf
'The rhythm of rest and excess' Professor Russell Foster – Head of Circadian and Visual Neuroscience
'The rhythm of rest and excess' article looks at the causes and consequences of sleep and circadian rhythm disruption
Wikipedia
Wikipedia is an online encyclopedia that features a page on narcolepsy.
Click on the link below to view the page
http://en.wikipedia.org/wiki/Narcolepsy
Other websites include:
http://www.teamidesign.com/narcolepsy
http://www.britishsnoring.co.uk
http://www.bitesizelife.com To build a worldwide community for People With Narcolepsy. Vision To be the premiere online support resource for People With Narcolepsy and related conditions. Philosophy Bite Size Life believes technology can improve the quality of life for PWNs. As the premiere destination for PWNs around the world, we promise to stay informed of the latest technology and to share it with the community. Facebook Link: http://www.facebook.com/group.php?gid=133221378662
Information to assist in funding applications and additional Xyrem resources
http://www.nice.org.uk/oldsite/appraisals/hsc_999.htm (see Chapter 5)
http://www.ukmi.nhs.uk/NewMaterial/html/docs/SodiumOxybateNMP0603.pdf
http://www.pcpoh.bham.ac.uk/publichealth/horizon/outputs/documents/2004/SodiumOxybate.pdf
You can find out more about the evidence base of various narcolepsy treatments via the following websites:
National electronic Library for Medicines (NeLM) – http://www.nelm.nhs.uk
National Prescribing Centre (NPC) – http://www.npc.co.uk
Tripdatabase – http://www.tripdatabase.com
