Patient Ambassadors

Narcolepsy Connections is supported by a group of Patient Ambassadors all of whom have different experiences of living with narcolepsy. Click on the links below to read their stories.

• Sam – When the doctors don't agree
• Elaine – A parent's perspective
• Gary – Delayed diagnosis
• Samantha – Coping with education
• Damian – Fighting for funding
• Siobhan – Discrimination at work
• Andrea – Misdiagnosis

Get in touch with our Patient Ambassadors by visiting the Narcolepsy Connections Facebook Group where you can send them a message directly. Go to Facebook (new users will need to register), search Narcolepsy Connections, click on groups and you will be directed to our profile page. Simply join the group and start chatting!